Epidemic Intelligence Service, CDC, is looking for cases resembling scleromyxedema or lichen myxedematosus. They have a new angle on the problem.

Guidelines for care for Scleroderma and Scleradermoid Disorders
American Academy of Dermatology

Lychen Myxedematosus (often used interchangeably with scleromyxedema). Includes background, pathophysiology, morbidity information.

National Organization for Rare Disorders (NORD)
Working toward the prevention, treatment, and cure of rare "orphan" diseases

Office of Rare Diseases
Information on 6,000+ rare diseases, including latest news, publications and current research.

Scleroderma from A to Z (diseases similar to scleroderma)

Papular Mucinosis and Scleromyxedema Internet Based Multicentre Study

Plasmapheresis in the treatment of Arndt--Gottron scleromyxedema
Abstracts from Bulletin of Dermatology and Venerology

Scleroderma Frequently Asked Questions

Scleroderma from A to Z message board (a forum that includes postings about scleromyxedema)

Scleromyxedema: possible association with seminoma

Scleromyxedema: response to high-dose intravenous immunoglobin (case studies and treatments)

Serum protein electrophoresis test helps identify M protein; biopsy may be required to pinpoint disease
Dermatology Times