Hi, my name is Bonnie and I suffer from a rare disease called Scleromyxedema. I created this website as a central hub where people who have this disease can come for information and support. We currently have two support groups with over 100 members. The first group is a Yahoo based email Scleromyxedema support group. The second group is a Facebook Scleromyxedema support group. Both groups are private closed groups and are subject to approval by a moderator before joining.
You can use the links to the right to learn more about Scleromyxedema and my struggle with it, and the links below to join the support groups.
Please email me with any questions that you might have about this website or the support groups.